Lots of updates

 We are extremely blessed!  I've fallen behind on here on blogging. A lot has happened. Let me try and catch up briefly on a few things. Eric's neurologist in Vegas thinks that Eric will recover. Eric's last EEG showed improvements. Less brain burn out and an increase in brain energy.  We did an exercise test in San Francisco that showed abnormalities on every level possible.  I'll try and post those results maybe.  After being a stay-at-home mom for 18 years I was amazed that I didn't even have to look for a job but they just started falling out of the sky in my lap.  I worked briefly as the housekeeper for two different hotels/bed and breakfast. I was offered Allison's pantry.  I was able to get a full-time job working from home with benefits for $14.15 hour.  It's a start. I went to school for X-ray and ultrasound but there are only three x-ray positions in the entire County with no openings currently.  One of the X-ray techs is due to retire in about 2 years and the other one is 67. So something will come open sooner or later.  I start my full time job with benefits, working from home tomorrow. It will be easier on Eric me and the kids with me working from home. I finished my first Alison's pantry order.  It was far from flawless but it went well for the most part. It will get easier and faster as I learn the products.

Salt Lake

    We are here in Salt Lake City lying in bed at 5:45 a.m. waiting for our Dr appointment at 7 at the University of Utah covid 19 long hauler clinic.  We aren't holding our breathe because no one seems to have a cure for long covid but we are hopeful that if there's any help to be had it's going to be here.  This clinic is supposed to be on the same level as the Mayo clinic.  Eric was diagnosed with long covid at the Covid aftercare clinic in Vegas but they offered no treatment or advice or anything. They only sent us to specialists to see what the extent of damage was. We are hoping this University of Utah clinic will offer some sort of treatment. 

     The test results from the specialists have all been negative so far meaning his lungs and heart and brain look good. We have one last test result we are waiting on- the EEG. 

     

    

     

Long covid

 https://m.youtube.com/watch?v=0gLmMPOHDwM&t=59s

Blessings

 

A week ago without asking  my ministering sister bought all the school supplies we needed for the kids to start school. I was so grateful because it was really low down on the priority list but was something that needed my attention.  Today she dropped off six bags of groceries. It's been really appreciated because there have been times when Eric and I have felt alone just because we're having a hard time finding a doctor who can help us.  These two acts of kindness have helped me to feel seen and heard, cared for, and loved. 

Recovery Day

 I woke up this morning and my limbs felt super heavy and I had a headache. Not surprising considering how busy the last two days were. We had a couple of Telehealth visits (thank goodness we didn't have to travel). The first was with the neuro psychologist who did the cognitive testing a couple of weeks ago. The results were pretty much what we expected: my brain is functioning well, my emotion health is not good (anxiety and depression), and my motor skills are low average to below average (due to tremors). The second was a follow up with the covid clinic in Las Vegas. I just updated him on the tests that have been done and let him know what the upcoming tests are. No changes, we'll follow up next month. Good news is that, even though I don't have a follow up with pulmonology for two weeks, I saw the results of the test done last week and my lungs are functioning normally. So we can check heart, lungs, and cognition off the list. 

First day of school!

 The kids went off this morning for the first day of school and were excited to see friends again. Amber and I drove down to Las Vegas for a neurologist appointment. I had an EEG done and the neurologist that we drove 2.5 hours to see spent a total of about two minutes with us. He only asked like three questions that only required a one word response. No history taken.  His exam took like 30 seconds.  The doctor's communication was poor. He ordered a brain MRI and Amber and I were back on the road again, heading home. It was a rough trip. I was still wore out from yesterday and had to lay down in the back seat for a couple of hours to clear my head of the brain fog. 

Lots of Docs

 Today was long. Amelia had a doctor appointment in st George and then I had a follow up with the psychiatric NP and then a neurofeedback treatment. Amelia had a sinus infection, but is doing well. The only change I had from the NP was that he increased my Propranolol to help with the tremors since 20mg wasn't making a difference. I was pretty wore out and ready for bed when we finally got home.