Long covid

 https://m.youtube.com/watch?v=0gLmMPOHDwM&t=59s

Blessings

 

A week ago without asking  my ministering sister bought all the school supplies we needed for the kids to start school. I was so grateful because it was really low down on the priority list but was something that needed my attention.  Today she dropped off six bags of groceries. It's been really appreciated because there have been times when Eric and I have felt alone just because we're having a hard time finding a doctor who can help us.  These two acts of kindness have helped me to feel seen and heard, cared for, and loved. 

Recovery Day

 I woke up this morning and my limbs felt super heavy and I had a headache. Not surprising considering how busy the last two days were. We had a couple of Telehealth visits (thank goodness we didn't have to travel). The first was with the neuro psychologist who did the cognitive testing a couple of weeks ago. The results were pretty much what we expected: my brain is functioning well, my emotion health is not good (anxiety and depression), and my motor skills are low average to below average (due to tremors). The second was a follow up with the covid clinic in Las Vegas. I just updated him on the tests that have been done and let him know what the upcoming tests are. No changes, we'll follow up next month. Good news is that, even though I don't have a follow up with pulmonology for two weeks, I saw the results of the test done last week and my lungs are functioning normally. So we can check heart, lungs, and cognition off the list. 

First day of school!

 The kids went off this morning for the first day of school and were excited to see friends again. Amber and I drove down to Las Vegas for a neurologist appointment. I had an EEG done and the neurologist that we drove 2.5 hours to see spent a total of about two minutes with us. He only asked like three questions that only required a one word response. No history taken.  His exam took like 30 seconds.  The doctor's communication was poor. He ordered a brain MRI and Amber and I were back on the road again, heading home. It was a rough trip. I was still wore out from yesterday and had to lay down in the back seat for a couple of hours to clear my head of the brain fog. 

Lots of Docs

 Today was long. Amelia had a doctor appointment in st George and then I had a follow up with the psychiatric NP and then a neurofeedback treatment. Amelia had a sinus infection, but is doing well. The only change I had from the NP was that he increased my Propranolol to help with the tremors since 20mg wasn't making a difference. I was pretty wore out and ready for bed when we finally got home. 

More rest, but not enough sleep.

 I've continued to have trouble sleeping through the night. Last night was probably the best I've had in a while as I was only awake for about an hour in the night. Another interesting thing that I've noticed increasingly occurring is the twitching before I fall asleep has increased and become more noticeable. For example, instead of my hand twitching a little as I doze off, my shoulder will jerk. Also, I've had a few incidents in the past few weeks where I wake myself up moving to go with my dream. The first time I dreamt that some animal was attacking my legs and I tried to kick it off. I woke up kicking my legs. The other two involved my arms. These aren't real issues by themselves, but do contribute to the sleeping difficulties. 

Meteor Shower

 Last night, Amber, Eric, William, Bradley, and Amelia layed on the trampoline and watched the meteor shower. Amber and Amelia nodded off pretty quickly, then Bradley and William went not too long after. We weren't out very late, but still saw some good meteors.

I had another session of neurofeedback today as well as a lung function test. I haven't been sleeping well over the last week and woke up pretty weak and tired this morning. I improved some by midday, but was wiped out again after the doctor's.